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dc.contributor.authorEdmonds, Brownsyne Tucker
dc.contributor.authorSavage, Teresa A.
dc.contributor.authorKimura, Robert E.
dc.contributor.authorKilpatrick, Sarah J.
dc.contributor.authorKuppermann, Miriam
dc.contributor.authorGrobman, William
dc.contributor.authorKavanaugh, Karen
dc.date.accessioned2019-05-22T22:54:35Z
dc.date.available2019-05-22T22:54:35Z
dc.date.issued2017-11
dc.identifier.issn1476-7058
dc.identifier.other10.1080/14767058.2017.1393066
dc.identifier.urihttp://hdl.handle.net/10027/23430
dc.descriptionPost print version of article may differ from published version. This is an electronic version of an article published in Tucker Edmonds, B., Savage, T. A., Kimura, R. E., Kilpatrick, S. J., Kuppermann, M., Grobman, W., & Kavanaugh, K. (2019). Prospective parents’ perspectives on antenatal decision making for the anticipated birth of a periviable infant. Journal of Maternal-Fetal and Neonatal Medicine, 32(5), 820-825. doi:10.1080/14767058.2017.1393066. Journal of Maternal-Fetal and Neonatal Medicine is available online at: http://www.informaworld.com/smpp/ DOI: 10.1080/14767058.2017.1393066en_US
dc.description.abstractObjective: To examine prospective parents’ perceptions of management options and outcomes in the context of threatened periviable delivery, and the values they apply in making antenatal decisions during this period. Study Design: Qualitative analysis of 46 antenatal interviews conducted at three tertiary-care hospitals with 54 prospective parents (40 pregnant women, 14 partners) who had received counseling for threatened periviable delivery (40 cases). Results: Participants most often recalled being involved in resuscitation, cerclage and delivery mode decisions. Over half (63.0%) desired a shared decision-making role. Most (85.2%) recalled hearing about morbidity and mortality, with many reiterating terms like “brain damage,” “disability,” and “handicap.” The potential for disability influenced decision making to variable degrees. In describing what mattered most, participant spoke of giving their child a “fighting chance;” others voiced concerns about “best interest,” a “healthy baby,” “pain and suffering,” and religious faith. Conclusion: Our findings underscore the importance of presenting clear information on disability and eliciting the factors that parents deem most important in making decisions about periviable birth.en_US
dc.description.sponsorshipWe thank the parents who participated in the larger study. This work was supported by the National Institute of Nursing Research (NINR) under Grant R01 NR07904. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of NINR. The final peer-reviewed manuscript is subject to the National Institutes of Health Public Access Policy.en_US
dc.language.isoenen_US
dc.publisherTaylor & Francisen_US
dc.subjectdecision makingen_US
dc.subjectpremature infantsen_US
dc.subjectparents, valuesen_US
dc.subjectantenatal counselingen_US
dc.titleProspective parents’ perspectives on antenatal decision making for the anticipated birth of a periviable infanten_US
dc.typeArticleen_US
dc.identifier.citationTucker Edmonds, B., Savage, T. A., Kimura, R. E., Kilpatrick, S. J., Kuppermann, M., Grobman, W., & Kavanaugh, K. (2019). Prospective parents’ perspectives on antenatal decision making for the anticipated birth of a periviable infant. Journal of Maternal-Fetal and Neonatal Medicine, 32(5), 820-825. doi:10.1080/14767058.2017.1393066en_US


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